• you have any questions regarding the project
  • or you want to be invited to our next public event
  • or you are willing to participate in the study on rare disease patients

You can contact us by e-mail at, or by filling the form below.

You will find all the informations relating to your data collections here.

Contact form

You must choose a reason
You must choose your position

If you are affected by a rare disease, could you please mention the name of your disease (optional)

You must choose the project knowlegde

* mandatory fields