Rare diseases aren't rare. How can European solidarity improve the daily life of 30 millions citizens?

Presentation on the recommendations of the EMRaDi project and discussion with European representatives and key stakeholders of the further EU policy developments regarding the approach towards rare diseases

Invitation to the EMRaDi project event

Rare Diseases Aren't Rare.

How can European solidarity improve the daily life of 30 million citizens?

The EU policy developments on rare diseases and the recommendations from the INTERREG-funded cross-border project EMRaDi*

How can we improve access to diagnosis, the quality of care and of cure? Which are the solutions to improve the life and the social inclusion of millions of patients suffering from a rare disease in the EU?

 

This event is co-hosted by MEPs

Frédérique Ries (Renew Europe) and Pascal Arimont (EPP)

 

When?

5th December 2019

11.30: registration
12.30: lunch
13.00: presentation and discussion
14.15: drink

Where?

European Parliament,
Room JAN 6Q1, Brussels

Register now

More info to come soon.

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05 12 2019

European Parliament, Room JAN 6Q1, Brussels