Presentation on the recommendations of the EMRaDi project and discussion with European representatives and key stakeholders of the further EU policy developments regarding the approach towards rare diseases
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Invitation to the EMRaDi project event
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Rare Diseases Aren't Rare.
How can European solidarity improve the daily life of 30 million citizens?
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The EU policy developments on rare diseases and the recommendations from the INTERREG-funded cross-border project EMRaDi
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How can we improve access to diagnosis and the quality of care? Which are the solutions to improve the life and the social inclusion of millions of patients suffering from a rare disease in the EU?
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This event is co-hosted by MEPs
Frédérique Ries (Renew Europe) and Pascal Arimont (EPP)
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Where?
European Parliament,
Room JAN 6Q1, Brussels
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For registrations received after the 25 November, access to the building cannot be guaranteed.
Programme
12.15: Registration
13.00: Opening speech (Frédérique Ries, Renew Europe)
13.05: Results and recommendations of the EMRaDi project (Caroline Glaude, Christian Mutual Health Fund, EMRaDi lead partner)
13.25: Panel discussion
Enrique Terol (EU Commission, DG SANTE, ERN)
Colm Friel (European Court of Auditors)
Matt Bolz-Johnson (Eurordis)
Vincent Bours (CHU Liège)
Timo Clemens (Maastricht University)
Moderator: Tamsin Rose
13.55: Q&A
14.10: Closing speech (Pascal Arimont, EPP)
14.15: Networking
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