EMR Rare Disease Day: documents

On 28 February 2019, the EMRaDi consortium gathered more than 20 speakers and 120 participants on the occasion of Rare Disease Day at the Euregio Meuse-Rhine.
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During this day, the preliminary results of the EMRaDi project were presented and the following question asked:

How can the health and quality of life of patients suffering from rare diseases be improved in the Euregio Meuse-Rhine, in cross-border regions and at European level?

This general question was examined using 3 key themes: awareness, patients undiagnosed/without diagnosis, as well as cross-boarder cooperation and healthcare.

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