EMR Rare Disease Day

Rare diseases across the borders:
Europe and the Euregio Meuse-Rhine (EMR)

On 28th February 2019 the EMR Rare Disease Day will take place in Maastricht.

Approximately 6-8% of the EU population (27 to 36 million European citizens) are affected by a rare disease, which is often chronical, progressive and life-threatening.

This day is an opportunity to interact on the cross-border healthcare situation for rare diseases, focusing on how the care for rare diseases can be more accessible in Europe and to answer the question: How can we improve the healthcare and quality of life of patients with rare diseases in Euregio Meuse-Rhine, in border regions and at a European level?

This event takes place within the scope of INTERREG “EMRaDi” (Euregio Meuse-Rhine Rare Diseases) project. The conference is organized by VSOP (Dutch patient alliance for rare and genetic diseases) in collaboration with the Mutualité chrétienne Verviers-Eupen, Solidaris/UNMS, Alliance Nationale des Mutualités Chrétiennes, CHU de Liège, Uniklinik RWTH Aachen, Maastricht UMC+ and the University of Maastricht.


Subscription and programme


Simultaneous interpretation in German, Dutch and French
of participation for all participants
Accreditation points for physicians from Belgium and Germany have been requested


The EMRaDi project, undertaken via the Interreg V-A Euregio Meuse-Rhine programme, is supported by the European Union, the European Regional Development Fund and regional co-financing (Région Wallonne, Provincie Limburg, Land Nordrhein-Westfalen).