Information for patients

As a patient with a rare disease or patient relative, you want to receive information that is specific to your situation.

The EMRaDi project partners gathers in-depth expertise in the field of rare diseases and cross-border healthcare.

As the EMRaDi project progresses, this page will include the guides and tools we develop: it will provide you with information on the medical and non-medical care of rare disease patients in your region and in a cross-border context (in the Euregio Meuse-Rhine).

Focus of the EMRaDi project : 8 selected rare diseases

The EMRaDi project focuses on specific rare diseases but also aims to help other rare disease patients and their relatives. 

In Belgium

In Germany

In the Netherlands

In the European Union