On the 5th of December, the INTERREG project “EMRaDi” presented its recommendations for a European Union approach on rare diseases at the European Parliament in Brussels.
The EMRaDi project has been selected as one of the candidates for the REGIOSTARS award. This annual prize is given by the European Commission to honour and reward the most innovative projects financed by the European Union.
On 28 February 2019, the EMRaDi consortium gathered more than 20 speakers and 120 participants on the occasion of Rare Disease Day at the Euregio Meuse-Rhine. Find all the documents here.
You are part of a patient organization that represents Huntington disease, Duchenne muscular dystrophy, chronic myeloid leukemia (CML), polycythemia vera (PV), Silver-Russel syndrome, Rett syndrome, galactosemia (type 1) or phenylketonuria?
The EMRaDi project focuses on eight rare diseases that are used as “tracers”, two diseases per disease group we focus on in EMRaDi project (syndromal, hematological, neurological, and metabolic rare diseases).
