EMR Rare Disease Day: documents

On 28 February, the EMRaDi consortium gathered together more than 20 speakers and 120 participants on the occasion of Rare Disease Day at the Euregio Meuse-Rhine.
Find all the documents here.

Press release: EMR Rare Disease Day

On 28th February it will be International Rare Disease Day.

On this occasion, the INTERREG project “EMRaDi” will organise the first Euregio Meuse-Rhine Rare Disease Day.


We need you to help us to identify the difficulties rare disease patients encounter in their daily life and care journeys in our regions.

Press release

On the occasion of its first anniversary, the partners of the EMRaDi project have issued a press release.

World Duchenne Awareness Day

7th September 2017: The project Rare Diseases in Euregio Meuse-Rhine supports World Duchenne Awareness Day

PATIENT SOUNDING BOARD: Call for patient representatives

You are part of a patient organization that represents Huntington disease, Duchenne muscular dystrophy, chronic myeloid leukemia (CML), polycythemia vera (PV), Silver-Russel syndrome, Rett syndrome, galactosemia (type 1) or phenylketonuria?

Selection of the rare diseases

The EMRaDi project focuses on eight rare diseases that are used as “tracers”, two diseases per disease group we focus on in EMRaDi project (syndromal, hematological, neurological, and metabolic rare diseases).