After more than three years of cross-border cooperation, on 17th February, the partners of the EMRaDi project will present their achievements in the optimisation of pathways for patients with a rare disease in the Euregio Meuse-Rhine at the Palais des Congrès in Liège.
The EMRaDi project has been selected as one of the candidates for the REGIOSTARS award. This annual prize is given by the European Commission to honour and reward the most innovative projects financed by the European Union.
You are part of a patient organization that represents Huntington disease, Duchenne muscular dystrophy, chronic myeloid leukemia (CML), polycythemia vera (PV), Silver-Russel syndrome, Rett syndrome, galactosemia (type 1) or phenylketonuria?
The EMRaDi project focuses on eight rare diseases that are used as “tracers”, two diseases per disease group we focus on in EMRaDi project (syndromal, hematological, neurological, and metabolic rare diseases).