On 28 February, the EMRaDi consortium gathered together more than 20 speakers and 120 participants on the occasion of Rare Disease Day at the Euregio Meuse-Rhine.
Find all the documents here.
During this day, the preliminary results of the EMRaDi project were presented and the following question asked:
How can the health and quality of life of patients suffering from rare diseases be improved in the Euregio Meuse-Rhine, in cross-border regions and at European level?
This general question was examined using 3 key themes: awareness, patients undiagnosed/without diagnosis, as well as cross-boarder cooperation and healthcare.