The partners of the EMRaDi project gathers an important expertise in terms of rare diseases and cross-border healthcare which will also be made accessible for health professionals.
Throughout the development of the EMRaDi project, this page will include the guides and tools we will develop : it will inform you about the possibilities and expertise available in your region and beyond the borders (in the Euregio Meuse-Rhine).
The EMRaDi project focuses on specific rare diseases but has also the objective to help the other rare disease patients and their relatives.
On 28 February 2019, the EMRaDi consortium gathered more than 20 speakers and 120 participants on the occasion of Rare Disease Day at the Euregio Meuse-Rhine.
During this day, the preliminary results of the EMRaDi project were presented and the following question asked:
How can the health and quality of life of patients suffering from rare diseases be improved in the Euregio Meuse-Rhine, in cross-border regions and at European level?
This general question was examined using 3 key themes: awareness, patients undiagnosed/without diagnosis, as well as cross-boarder cooperation and healthcare.